Committed to funding      research so that children born with GSD1 will benefit from early detection, treatment and eventual cure.



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About Our Foundation

This not-for-profit 501C-3 foundation was established by Wendy & David Feldman after their son, Jonah, was diagnosed with Glycogen Storage Disease, type 1a. Since then our foundation has grown as more families have joined together, all with the common goal of curing GSD.

In an effort to minimize expenses and maximize the funds available for research, all fundraising will be done on a volunteer basis.  No paid professional fundraisers will be used. Your generosity will go directly into the most promising GSD research.

Board of Directors

Harriet Bonelli

David Feldman

Wendy Feldman

Lisa Hodes

Sanford Hodes

Michael Julius

Fran Reed

Teri Reed

Valerie Rosen

 

Scientific Advisory Board

Andrew Arnold, MD

UConn Health Center

Hayden Bosworth, PhD

Veterans Affairs Medical Center

YT Chen, MD, PhD,

Duke University Medical Center, Academia Sinica, Taiwan

David Feldman, DMD

Pramod K Mistry, MD, PhD, FRCP

Yale Univ. School of Medicine

Marybeth Schmidt, PhD

Fundraising Committee Chair

Lisa Hodes

The Children's Fund for GSD Research
This not-for-profit (501c3) foundation has been established to benefit children born with Glycogen Storage Disease, Type 1 (GSD1).

917 Bethany Mountain Road
Cheshire, CT 06410
.
203.272.CURE
203.272.7744
917 Bethany Mountain Road • Cheshire, CT 06410 • 203.272.CURE or 203.272.7744.