This not-for-profit 501C-3 foundation was established by Wendy & David Feldman after their son, Jonah, was diagnosed with Glycogen Storage Disease, type 1a. Since then our foundation has grown as more families have joined together, all with the common goal of curing GSD.
In an effort to minimize expenses and maximize the funds available for research, all fundraising will be done on a volunteer basis. No paid professional fundraisers will be used. Your generosity will go directly into the most promising GSD research.
Board of Directors
Scientific Advisory Board
Andrew Arnold, MD
UConn Health Center
Hayden Bosworth, PhD
Veterans Affairs Medical Center
YT Chen, MD, PhD,
Duke University Medical Center, Academia Sinica, Taiwan
David Feldman, DMD
Pramod K Mistry, MD, PhD, FRCP
Yale Univ. School of Medicine
Marybeth Schmidt, PhD
Fundraising Committee Chair
The Children's Fund for GSD Research
This not-for-profit (501c3) foundation has been established to benefit children born with Glycogen Storage Disease, Type 1 (GSD1).