Committed to funding      research so that children born with GSD1 will benefit from early detection, treatment and eventual cure.

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Links - Websites of Interest
National Organization for Rare Disorders (NORD)
A comprehensive database working toward the prevention, treatment and cure of rare "orphan" diseases.

http://www.rarediseases.org
Genzyme Genetics - Genzyme Corporation
Please visit this website to find out more information on testing for GSD1a.GSD1a was recently added to the Ashkenazi Jewish prenatal screening panel.

http://www.genzymegenetics.com
Association for Glycogen Storage Disease (UK)
Established in 1986 as a family contact and support group for all persons and their families affected by some form of GSD.

http://www.agsd.org.uk
Association for Glycogen Storage Disease (US)
Established in 1979 as a parent and patient oriented support group for anyone associated with GSD.

http://www.agsdus.org
Duke University Medical Center, Dr. Dwight Koeberl
Research Information page

https://faculty.duke.edu/faculty/info?pid=4836
University of Florida, Dr. David Weinstein
Glycogen Storage Disease Program website

http://www.glycogenstoragedisease.com


The Children's Fund for GSD Research
This not-for-profit (501c3) foundation has been established to benefit children born with Glycogen Storage Disease, Type 1 (GSD1).

917 Bethany Mountain Road
Cheshire, CT 06410
.
203.272.CURE
203.272.7744
http://www.curegsd.org
info@curegsd.org
917 Bethany Mountain Road • Cheshire, CT 06410 • 203.272.CURE or 203.272.7744.