Our goal is to help find a cure for this disease by raising monies for GSD1 related research. The Children's Fund for GSD Research is run entirely by volunteers.
As little as 25 years ago, a child born with an inherited disease such as GSD1 had very little chance of survival beyond one or two years. Tremendous strides have been made since then, but great challenges still exist. Additional funding for research can and will make a real difference.
We invite you to explore our website to learn more about GSD1, the Fund and our efforts.
Brayden's Lansdale of Orting, WA, is turning 6 on April 21st and he is having a "Birthday Bash" to celebrate! In lieu of presents, Brayden has asked his friends and family to help find a cure for GSD by making a donation to The Children's Fund for GSD Research. Thank you Brayden! We hope your bash is The Best!! HAPPY BIRTHDAY!!
Ben Hodes, cousin of Samantha & Katie Hodes, will become a Bar Mitzvah on May 11, 2013. For his Mitzvah Project, Ben will be selling bracelets to help his cousins and all children afflicted with GSD1. Thank you Ben!
On May 11th Sarah Feldman will be celebrating her Bat Mitzvah.
She and her family have graciously asked that guests make contributions to The Children's Fund for GSD Research to help her cousin, Jonah and other children with Glycogen Storage Disease.
Zack & Jake Gordon will both become a Bar Mitzvah this year. For their Mitzvah Project, they are hosting a co-ed basketball tournament to raise money for GSD research. The event will take place on April 5th at Club Fit in Briarcliff, NY.
CureGSD Wristbands for sale at Williamstown Middle School!
Jack Trimble and Eric McCoy designed these cool CureGSD wristbands to help raise money for our foundation and help find a cure for their friend Justin Bagin. The wristbands are $2 each and will be available during homeroom and in the School Store while supplies last. Get a wristband of Black & Blue to Help a Kid Like YOU!
"Chocolate Bar" means "awesome" to 6-year-old Dylan, who wrote this book to raise $1 million towards a cure for his best friend's rare liver disease, GSD1b. Click the link below to read more and to order the book!
Shop on-line and help us raise money for GSD research!
iGive.com has partnered with over 900 brand name stores to help us raise money for The Children' Fund. Each time you make a purchase at one of these stores (Amazon, Best Buy, Apple, Lego, Vera Bradley, Personalization Mall, etc.) a percentage is donated to our foundation. It only takes a minute to sign up and doesn't cost you anything. We have already raised over $1,000.00 for research! Please click below to sign up and start shopping.
Thank you to PEDIATRIX MEDICAL GROUP for sponsoring our website. We are getting closer to a cure every day and funding is critical to our success. We truly appreciate the generosity of Pediatrix for it's support of our site and our ongoing efforts to spread awareness and help educate families about Glycogen Storage Disease.
Our annual newsletters are a great way to learn about GSD, our families and our fundraising efforts. Our most recent newsletter is posted here, along with each newsletter since our inception. Please take a peek and see how far we've come.